I’m a twenty-eight year old dealing with Hypermobility Syndrome (HMS), which is sometimes categorized as Ehlers Danlos Type (III). I was finally diagnosed in 2012 and have since lived with tapes, slings and guards on most parts of my body. It’s been one hell of a life-altering ride.
I don’t claim to be an expert in HMS or EDS and I defnitely don’t have it all figured out. I’m just one of the many out there who suffers from a rare, chronic and invisible illness and keeps going. My intention here is to simply put together all aspects of living and dealing with HMS/EDS, including the loss and gain – both of which, I believe, are essential to who I am today and who I become tomorrow.
I read, write, dream and create.
I tend to be very honest towards my pain and its needs. I think pain is real and there’s no need to hide it from people or distract ourselves from it. It’s a part of our reality and existence on this planet and we can work towards embracing it. Pain is nothing but our body’s attempt to communicate with us that something isn’t quite right; that something needs to change. I’ve realized that distracting from pain leads to a lot more suffering than one can even imagine. My approach is to listen to pain, tend to it, and let it guide me to what needs to be done next.
Currently, I volunteer as a coach (guide/be-friender) to children with troubled childhoods. I’ve always believed that our childhood environment affects us deeply and that having a strong support system is the most fundamental building block that shapes our initial growth. I’m happy to be a part of someone’s support system and do what I can do with what I have.
I also teach Creative Meditation to both kids and adults. I believe our creative energy and potential can be effectively utilised to remove the not-so-nice things out of our system and to help us deal with stress better. I teach how to use art and intricate patterns as tools to look slow down, look inwards, practice mindfulness and gratitude. It’s a great way to kick-start your meditation journey if you’re new to it or find it overwhelming.
As a to-be Certified Life Coach, I aspire to work with people seeking empowerment in their personal lives, especially on the fronts of healing, mental & physical health and relationships. I believe that my personal life experience + skills & strengths + volunteering & teaching experience + a certification in Life Coaching will allow me to make a difference in the lives of others by first doing so in mine. I believe in running my business from the heart and my passion for extending help supports this belief.
Pain might be a part of life for now but I choose to suffer less, make necessary lifestyle changes and manage my predictably unpredictable life to the best of my ability.
One of the greatest lessons I’ve learned from my life up till now is to always have a sense of direction, and, to remember that life can have completely different plans. It’s not so much about these ‘plans’ as much as it is about how gracefully one can adapt to an unexpected situation. I’ve come to a conclusion that when life takes an unanticipated turn, the best you can do is take it #OneDayAtaTime.
I’ve realized that personal and patient empowerment are both imperative to healing and this journey that we are on. My goal is to continue empowering myself so that I’m able to help others empower themselves.
This is my journey. My tape story.