Rare

  
Happy Rare Disease Day to all those lovely and courageous #spoonies out there! Let’s continue to make choices that honour our body and live to the best of our ability, not #disability. 💖❤️💛💚💙💜💖 Sending lots of love and spoons your way! #medicalzebra #rare

 
On some days, I just do not want to follow any kind of structure. Nothing at all. It just annoys me to make certain things a particular way – as if it just has to be the way it is and we have to restrict our power of imagination.

Today, I started off with beautiful black and white hand-drawn circles, which I wanted to make into a mandala but as I worked on each ring, I started feeling more and more bothered about how neat it has (or rather, how neat I want it to be) to be blah, blah .. Blah blah. I’m always telling people in my class to let go and not plan every single detail, to not get bogged down by the need to be perfect… And there I was doing the exact opposite, when I didn’t quite feel like it.Trying to make it perfect when I really just wanted it to be imperfect. I want to just let go today.

I don’t generally plan out or measure out every detail of my hand-drawn stuff anyway. I’ve realized it stresses my brain and body out so I usually just do a rough gauge and intend it to turn out well but to really really really NOT care at all… That’s something for me.

So the next thing I know, I was using a ridiculously thick black marker, making swirls and waves and not caring which direction they turn towards, filling in orange for the leaves, adding pink and green into the waves, blue into the flowers, painting outside and drawing over and above lines and I seriously… Did not give what this turns into. And you know what? It felt good. Really good.

To not give a damn about the outcome and just do what you feel like doing at that moment in time feels really amazing at times. Especially when you’ve spent weeks and weeks just planning, working your ass off towards something, pushing yourself, used a lot of your brain cells… It feels good to not care once in a while.

We need to not care once in a while and just be.

We need to create more of such moments.

Happy Saturday, everyone! #breathe #letgo #whatever #patterns #zentagrams #zentangles #mandala #art #artwork #design #perfection #imperfection

February 29, 2016 

 
February 29th is just around the corner. It’s time again to show your support, create awareness and do your bit to make the voice of Rare Diseases heard. 

All you’d have to do is change your profile picture on Social Media (Facebook and Instagram especially) for about a week, starting February 29th and add a couple of hashtags (will confirm soon) but that’s it. That’s all that needs to be done!We use Social Media for all sorts of things, don’t we? Why not use it to create awareness for Rare Diseases then?

Seriously people, no form of illness is easy for the patient or their loved ones, let alone the illnesses. There are SO many weird, messed up health conditions out there that need more research, some sort of solution and treatment and not many of us even know. Imagine living with something no one can make sense of.

Who’s with me this time? Drop me a Purple Heart 💜 if you’re up for it right in the comments section below and I’ll send you the materials we’d need of that one week. Just ONE week people.

Thank you in advance for all the love and support! I genuinely appreciate each one of you for for being around and trying to do your part in raising awareness for RDs.

For more information, please visit the main website at  http://www.rarediseaseday.org

MD

❤︎

6 years ago 

I could lift my arms up, to any height, hold them up for as long as I wanted to and I didn’t feel any sort of pain or discomfort


Well, I could stand for hours  ay Design school, get home and swim, hang out with my friends, work on my projects and not have to worry about not being able to get out of bed the next day


And of course, I could just bend at my knees  easily as and when, for as long as I want 

That’s Me.
Six years ago when my left shoulder was just a “one-off thing”, my health was already showing me signs but we thought they weren’t a big deal, I was still heading on the path of becoming an Interior Architect, teaching and choreographing Bollywood dance, swimming and kayaking used to make me feel alive, goals and success had a different definition altogether and I used to think making everyone else happy was the key to my happiness.I didn’t know what it was to be in pain twenty-four/seven. I can’t believe life had to put in so much effort to slow me down :)  SO much had to fall apart and indirectly fall in place for me to be where I am today – I’m able to look back and think and see the lessons I’ve learnt, the choices and decisions I’ve made, the friends who’ve stayed, the people I’ve come across in this mad journey, those who have inspired me to continue and have been inspired by me and I actually feel alright with how life has turned out. There’s still lots that needs to fall in place (and probably fall apart too) but I’ve realized there’s no race to run and that even if there is, it’s not the kind of race I’d like to be a part of anymore. There’s no tomorrow if you can’t live today. With some amount of direction in my mind, one day at a time is still my mantra and will be for the rest of my life. Six years (and counting for all the years to come) of fighting and struggling against my own health and body has made me who I am and is surely making me who I’d like to be. This is different and I’m okay with it being different now.

February 14, 2016 

It doesn’t matter if you’re single or in a relationship, there is always (always) an opportunity to pause, breathe and remind yourself that you are your own first before you can be someone else’s.

If you’re single and haven’t met the love of your life yet, the best part is – you still have enough time to start practicing self-acceptance and self-love, to complete yourself first before trying to complete someone else or having someone else complete you. To become comfortable being alone with yourself first, so you can deeply enjoy the moments of togetherness with someone else. You have all the time in this world to learn how to be gentle and patient with yourself. Practicing self-love gives you an opportunity to celebrate a day of love, every day of the year. Putting yourself first is not selfish; it is necessary – to cultivate a healthy relationship with your own mind and body, and with your loved ones.

If you’re in a relationship, it’s only healthy, if not even more necessary, to find some time with yourself. Whether that’s to sit in peace with yourself , to do things you love or to simply validate yourself for being who you are; regardless of the validation you may receive from someone else. Being there for yourself first allows you the emotional, mental and even the physical capacity to be there for those you love even more. There’s no way one can give out of an empty well. Practicing self -love becomes even more important when you’re in a relationship because as you continue to strengthen the bond between your own mind and body, you encourage others to do the same. As you recognize your own needs, you recognize and respect the needs of others. This way, your relationship grows into a beautiful partnership, and you each become an integral part of it. Celebrating a relationship that has its foundation in place becomes a daily practice, not just a once -in- a -year event.

Choose to celebrate love ( of all kinds) every, single (or not) day of your life. Because love is within you, not next to you or no where to nowhere to be found.

#chooselove #practicelove #celebratelove #loveoflkinds #selflove

@mdalvi15

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