Haircut day

Ending April with a haircut!💇🏼‍♀️ It was over a year since I had a haircut, and once again, my recent left shoulder strain + health issues throughout April made me realise it was high time. With EDS (pain, sublaxation, dislocations, heat intolerance etc.) and SIBO (excessive hairfall etc.), I find it quite challenging to manage long hair so I’m glad I finally got it done. It’s crazy how light my head feels after 7 inches of hair is chopped off! I look forward to much lesser time and effort put into haircare throughout summer.🌞

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#butyoudontlooksick

Long story short: This is what a bit of mascara + motivation + medicines & a beautiful lehenga can do. It took me approximately an hour and half to get ready 🐢, my dad drove me to the event and back (this is was too special an event to miss) within an hour, and I have just been resting in bed since. After one week (and one tiring month of health issues one after the other) of fighting some GI issues and contemplating whether to leave my house for a short bit or not, I couldn’t be happier I made it there!🙏🏼✨💗

Update

It seems I’ve caught a stomach bug, no idea where, when and how. It’s not like I have been eating out or eating anything raw.

So the bug, along with my existing SIBO symptoms became a little much for my body to handle, especially since I haven’t been too well anyway given the stress of recent transition. I had to be rushed to the hospital two days back because my fever shot up and I was shivering violently, so much so I could barely speak or hold my phone. It’s 40 degrees here and I was wearing 3 thick layers + wrapped in a thick blanket, had my socks on and yet it wasn’t enough.

They gave me an injection and called for some blood work. Blood work showed that both my red and white blood cell count was abnormally low but for understandable reasons. For now, we just need to observe and see how things go. I’ve been put on two strong antibiotics + other medicines for management of the gut symptoms and fever.

Gosh. April has been INTENSE. I had two wisdom teeth extracted, then a massive allergy attack, followed by a great fall in the bathroom and now a flare of SIBO + a stomach infection. I’m terribly fatigued and disoriented. Fever, nausea and stomach cramps keep me falling in and out of sleep. I’m feeling weak as hell, especially after a couple of palpitation episodes.

Again, if this was a few years back, I’d have been a total wreck; not just physically but mentally + emotionally too. Of course it’s not easy to deal with so much all at once but what I know from the last nine.five years is that it gets easier when you’re on the same team as your body. Extremely thankful for the love and support of my physiotherapist, my friend Rohan, dad and my family’s ex-helper who happened to be around.

While I completely support the idea of living as independently as possible even when we’re chronically ill, I also know that there are and will be times we just need extra help to manage our health and we must learn to ask for it.

#ehlersdanlossyndrome #hypermobility #chronicillness #disgestive #chronicwarrior #spoonie #EDS #spoonielife #multisystemic #illness #chronic #pain #fatigue #sibo #weakness #bloodwork #newplace #hospital #hospitallife

Morning ritual✨

Day four of not leaving home and spending most of my time in bed. I slipped and fell in the bathroom last Sunday. Thankfully, no dislocations or major injuries (I’m guessing) but my body is in a bit of shock. My right side took the most impact, mainly my hip, my right knee, elbow and wrist. As expected, there’s some bruising and inflammation around the impacted areas and there is a deep ache in the surrounding muscles which doesn’t seem to reduce no matter what.

In the last three weeks, I’ve had two wisdom teeth extracted, a terrible allergy attack and then a fall in bathroom. All in all, pain is out the roof, fatigue is at its worst and all that gives me a bit of relief is using ice packs, staying horizontal as much as possible and doing my rituals to remain sane. I’m a strong believer of having personal rituals to remain grounded through the unpredictability of life. I’ve got soooo many things coming up from next week! It’s bloody exciting!

As usual, I’m practising being as present as possible, which means really grounding myself into what is NOW and taking it one hour at a time. I’m giving myself what I call “forceful rest” where I make sure to rest even if I don’t want to. I don’t want to because my mind doesn’t want to. It always wants to do more.

When I go into the “forceful rest” mode, I make sure I listen to the needs of my body and let everything else adjust accordingly. I’ve noticed that for me to recover from unexpected trauma like that, rest and sleep is of utmost importance.

Thank you for reading!

#ehlersdanlossyndrome #hypermobility #rituals #reading #writing #spoonie #rest #recovery #healing #pain #life #unpredictable

EDS may be a big part of my journey but it isn’t everything ❤️

I’m starting to see how this illness is a vehicle for me to look inwards, to become a better person and to live a more fulfilled life.

I’m not grateful for the pain I experience but I’m definitely grateful for the lessons and blessings that have come along with being made out of faulty collagen.

The more I accept this illness and the body that I’m in, the more I realise that I am more.  That I am whole despite the brokenness that often follows an illness.

I’d like to believe that as I continue to do the work I need to do for my own healing, I am more equipped to offer the same to the world. One thing is for sure, I’m learning to own this illness but I’ll never let the illness own me.

Love to all

-M