Right Knee Update [2]

 Alright, unfortunately, my right knee isn’t doing as well as I thought. Turns out, it might need even longer and I’m also not entirely sure what’s going on.

I’m in pain and it seems to be spreading into my right thigh, up my back, down my right calf into my toes. My leg feels heavy and I can see that my body is really trying hard to hold everything in place. The left side of my body is trying to compensate and getting tired as well. All the surrounding muscles have tightened up and that’s naturally adding to the pain too.

Vicious cycle which doesn’t help.

Knowing my body, waiting it out without getting it checked is just not wise. I’ve been taking anti-inflammatory tablets to help with the swelling and inflammation, I’m mostly at home and resting, still icing it, have it taped up and doing whatever that’s in my control. As I said, though the hit wasn’t that bad altogether, its impact could have been quite significant on my body internally.

I’m going to give it till Monday to see if it gets any better if not I’m off to see my knee specialist and he might run me through some tests and scans. Just about a week back and till this incident took place, I was doing pretty alright, learning to manage my body along with the new additions 2016 has introduced into my life.

But. Well. Life. Had. Other. Plans.

Perhaps it’s a reminder to go even slower. Yep, slower than the rate I’m going at, which is pretty slow anyway.  I must take it for what it is today. And today I can’t do much about it except tend to it. Tomorrow might be different and I’ll look at tomorrow tomorrow.

I wish everyone a very happy long weekend. Rest your body if you’re tired, give it what it needs while it whispers to you. Don’t let it scream at you, please.

Lots of love,




Right Knee Update [1]

Thank you everyone! I truly appreciate all the love and kindness I’ve received from all of you. Thank you especially to those who called and messaged to check on me. I was in bed last night for three hours straight, icing my knee and releasing the tightness around it and just holding myself in place. I also manage to tape my knee up and put a guard on just to make sure it doesn’t shift in sleep. Got up this morning feeling super drained out, as if I ran a marathon last evening.

On a normal day, I’m already using a considerable amount of energy to hold myself up, given the nine degenerative and unstable joints I have. A small incident like last night’s requires even more out of me and my entire body. The good thing is that I am able to stand up and walk around today, albeit slower than usual and with a cane for support, but it is still manageable.

Thank goodness it’s nothing major and just seems like a slight amount of internal bruising. With EDS, it’s easy to hurt and bruise yourself as you can’t always gauge when what goes wrong. The impact does a lot more harm and you experience a significant amount of pain as compared to someone else in the same situation. As usual, one can’t always tell the effect on skin level, but turn out bodies inside out and you’ll see what a magnificent mess it can be :) Anyway, it’s a matter of a few days … lots of extra rest and care, usual pain management and being kind to my body and I will be up and about again.

Right Knee [shelf incident live]

It’s unbelievable even now, at least a bit still, that just ten minutes back, you’re chatting with your best friend, working on your business and happy about your day and now, just ten minutes later… You’re in bed, with an ice pack over your badly bruised knee.
I was just sitting on my office chair and i tried to scoot in and hit my right knee against a shelf and that was it. I’m pretty sure that my knee cap had a mini sublaxation in that fraction of a second. That impact, that pain… Was intense… Is intense.. And I was there… Stuck on my chair for ten minutes,tears rolling down my eyes, unable to move, wondering how to reach for my ice packs which were at least a twenty steps away.

Thank goodness my walking cane was right next to me and I managed to get myself up, grab my ice packs and get to my bed. Your body has its ways of reminding you that you aren’t dreaming. This is real. All of it. Every single day.
I’m resting it out for now. I’ll figure out what to do next very soon. It all depends on how well I’m able to weight bear once I attempt to get up. I think ill be fine… Maybe not today or tomorrow… But soon.

If you’re thinking, “What’s the big deal?”, then all I can say is that it is worth educating yourself about the “big deal” that it can be. Think about it… If you’re capable of dislocating your joints without any trauma/accident and experience pain 24/7, you imagine what a slight impact can even do.

I’ve had my shoulder move out of place when someone at college bumped into me. I’ve had my knee caps, shoulders, back and neck experience the worst kind of impact in a mini car accident. So many more of such incidents and they were all a huge deal.

Things go wrong while you’re at home, doing the most basic of things. I’ve had my shoulder move out while washing my hair, my wrist move out while brushing, I’ve had my right shoulder move out of place from just opening my fridge, my knees giving away from sitting on the floor, my back has its flare ups almost every day from “too much” walking or sitting… and the list just goes on.

I never really post about such incident live but I thought I’d do it with the last few spoons I’ve got for the day. My energy is down to zero from just trying to hold myself together physically. Bear with me if my thoughts are all over the place right now. Just wanted to share this experience as it just happened and I still find myself wondering how ridiculously unpredictable life can be when you’re dealing with something so rare.

Goodnight everyone

Mini Gluten-free Pancake Stack

Mini Gluten-free Pancake Stack 

Oats flour (GF) + a bit of rice flour + buckwheat flour + coconut flour + soy milk + vanilla essence + baking powder + just a bit of coconut sugar (I didn’t want them too sweet) 

I’m not vegan (yet?) but at times I don’t like eggs in my pancakes so that ends up making them vegan too, since there’s nothing else in them that could possibly make them non-vegan :)

I got too tired to make them all pretty with yummy stuff on it… I’m sure some of you can relate! #chronicillness #pain #fatigue #spoonielife

I made really mini ones (they’ll last me for a few days) as I’ve been bloated for too long now – I could honestly do without eating much right now but considering the amount of medicines that I’m taking, I end up having to eat a little more anyway. Experience has taught me how not having enough food in your stomach and taking too many pills could lead to horrible gastro-issues. So no thank you.

It’s annoying that there is a tendency of this strange bloating leading to unnecessary weight gain in the future. I mean, I’m not being all “oh my god I’m so fat” but I do realize how excess weight could possibly burden my joints even more. It’s just a matter of being a tiny bit extra cautious.

All this is a part and parcel of dealing with such illnesses and we always wil find ways to manage it. At least that’s what I tell myself :)

So, gluten-free & vegan pancakes anyone?

Happy Weekend, all!