I’m at a point where by I need and don’t need food at the same time. I need food because I think it doesn’t make sense to go on an empty stomach all day and I don’t need food because I just can’t seem to get it down my throat.
For the next few days while I continue taking the supplements and some plant-based medicines that my Naturopath has put me on, I’ve been told very specifically to stay off gluten, dairy and raw salads (in fact, anything raw except green juice or coconut juice). I don’t think I’m particularly going to miss gluten and dairy much anywa. I attempted adding coconut milk in my coffee and I’m still figuring out what I think of it.
Since rice is supposed to be one of the easiest grains to digest, I’ve been told to attempt having at least a couple of spoons of porridge. Honestly, just the thought itself of putting any form of carbohydrates in my tummy is so revolting at this point. But because I do need some emergency food, I’ve made myself some steamed garlic vegetables and soft basmati rice, for when and if I feel hungry. I also managed to make a yellow moong dal which is also very light on your digestive system.
My exhaustion seems to be getting worse for some reason. I remember coming back home from my long day out after meeting my Naturopath and feeling completely drained out. Totally battery flat, feeling like I ran a marathon. Technically, running between two clinics and a pharmacy could be considered a marathon for me. I surely have to watch if this (extra) fatigue gets worse over the next few days. I won’t be surprised if all of it has to do with my loss of appetite. My gut feeling is that my gut isn’t feeling too well at all.
I wish I could say that my joints are fine while my digestive system is losing balance. Well, my right knee is swollen and poofy, probably just from walking and it hurts deep in the joint. I’ve also developed a small bruise around my right knee for absolutely no reason and the pain from it seems very deep as well. And because my right knee is not doing well, both my back and glutes are killing me. I hope I’m able to stick to my walking because the last thing anyone wants is more loss of movement while figuring out their digestive system. Where is my appetite anyway?!!??
It seems my previous blood test reflected that I am very low on Iron and Vitamin D so a Naturopath that I saw today for the first time has put me on prescribed supplements for the next couple of weeks. This includes a powdered Iron drink and a more potent form of vitamin D drops. I’ve been told that my low Iron could be adding to the brain fog and making exhaustion and fatigue from EDS even worse – possibly?
Over the next two weeks, I’ve also got to watch my unpredictable symptoms of IBS. It may all be pointing towards something more serious (or maybe not) and it’s better to have it checked. I’ve been given medication to help with severe bloating. I sometimes wish I could take some troublesome parts out of my body, send them for repair and assemble them back in place after sometime.
It’s been about 6 months now and I am always so full and have no appetite whatsoever. Yet, because my brain tells me that it makes no sense to go without food when I’m on that much medication, I force myself to eat. It’s also not as though I’m losing any weight. Instead, I’m only feeling heavy and full from very small portions. #chronicillnessissues
I’ll be going back to her in about two weeks and till then I have to follow what she’s told me to do. It’s going to be a step-wise process to figure out why my digestive system has been so wonky. It could be anything from SIBO to candida to a side-effect of taking all kinds of medication for the last 7 years. We don’t know yet. She also ordered for a blood-test to check on my thyroid, again, just to be on a safer side.
Honestly, she’s seemed like a very patient doctor and like most alternative or complementary medicine therapists/doctor, wanted to know every bit of my experience since my first major symptom back in 2009. I’m really hopeful about my treatment from her because my last visit to a Gastroenterologist left me thinking that there is no way forward without going in for a colonoscopy and gastroscopy. I wish it doesn’t get to any of it – one, because my body shows terrible side-effects to sedation and two, because I’m still in the process of figuring out my insurance and don’t want to be paying some $6,000 for these scopes just yet.
I had a really long day today and I haven’t yet fully recovered for yesterday’s brain fog.
One step at a time.
One day at a time.
Good night, all!
With a multi-systemic disorder like EDS comes a very moody digestive system. I’ve always been such a breakfast person and for the last 5 months, I’ve been waking up not wanting to eat anything all. I don’t remember the last time I made myself a proper breakfast and enjoyed it like I used to. Not eating anything doesn’t work because there are so many pills to take and I end up forcing myself a little bit. Sometimes I skip breakfast (not by choice but because my body just doesn’t want it) completely and wait for lunch, hoping I’d be hungry enough. Like today. I’ve got more pills for later and it wouldn’t have made sense to go without eating any further so I made myself a decently heavy salad.
Let’s see, what do I have here…
- Baby Carrots
- Purple Cabbage
- Yellow Capsicum
- Sesame Soy Tofu
- Roasted Garlic Chicken
- Base of Greens and Herb Mix
And over the weekend, I made an Asian style peanut sauce with spices and herbs too. To make life easier, I used natural peanut butter as the base. It turned out perfect!
This looks like a bouquet on my plate!