Pocari 

You don’t really need to sweat to need Pocari sweat. For some of us, just living and dealing with a body that is different needs a lot more energy than one could imagine.

In some ways, we’re always hiking up mental and emotional mountains, taking on non-existent physical marathons or triathlons  and working out ways to manage limitations. Every bit our existence requires tremendous effort to simply not fall apart.

If I were to try and put it in other words, living with an illness like HMS/EDS feels like you’re doing a full-time job seven days a week 24 hours a day or babysitting a child (which is nothing but your own body) every minute of your life (okay, you don’t get a proper rest either) Now imagine  having to do either + experience debilitating pain.

Anyone could do with more isotonic drinks after that. I usually opt for coconut water, Pocari sweat or 100 Plus Edge. Coconut water is always my first choice, unless I just want a change. 

P.S. Holding up a 2L bottle was a bad bad bad idea. Please do not even try if you’ve got a wobbly wrist because I do and I messed up.

 

#Spoonielife

You know you’re a spoonie when you wear your pretty little black dress to bed and feel okay about it.

Alright, jokes apart, it’s my fifth day in bed and my back is still spasming. I’m okay to lie down or stand up for a bit but I just can’t sit or walk around as yet. Yesterday’s Physiotherapy and dry needling session gave me some relief and now my muscles are tight and pretty much knotting up all over again! I’ve got a couple more days before my next session and must manage till then. Already looking forward to it.

Happy resting, my dear spoonies!

💕


Today has been a rough day. There is nothing worse than having a flare up during your monthly cycle. My back and tailbone are experiencing deadly spasms and the cramps this time are worse than last month. Monthly cycles don’t look the same like they did years back. EDS takes your ordinary monthly cycle issues to yet another level.  Pain level just shoots up, your joints feel more loose than normal, (I’m excluding all the other common symptoms every woman deals with anyway) and getting out of bed is next to impossible. I’ve forgotten how to function today.