EDS may be a big part of my journey but it isn’t everything ❤️

I’m starting to see how this illness is a vehicle for me to look inwards, to become a better person and to live a more fulfilled life.

I’m not grateful for the pain I experience but I’m definitely grateful for the lessons and blessings that have come along with being made out of faulty collagen.

The more I accept this illness and the body that I’m in, the more I realise that I am more.  That I am whole despite the brokenness that often follows an illness.

I’d like to believe that as I continue to do the work I need to do for my own healing, I am more equipped to offer the same to the world. One thing is for sure, I’m learning to own this illness but I’ll never let the illness own me.

Love to all

-M

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Whoever told mankind that being strong involved no tears

 clearly wasn’t aware of any chronic illness.

It’s been a while since I teared up thinking about my health. I somehow don’t cry much about my health anymore. I realize I’m doing all I can and that’s enough for me to not feel like total shit about my health.

But today was different. It was random. Unexpected.

I just burst into tears on my uber ride back home from the hospital.I had a lot of thoughts running through my mind. And a pathetically sad song playing on my iPhone.

Now that I think about it, I know I just got overwhelmed looking at another bag full of medicines. A new set again, for these new symptoms which won’t go away. The medical bills. The time. The energy expenditure. The fatigue. The pain.

It can get to you at times. It really can.

It’s a constant dance between your present and future. Every choice, every decision matters. You wake up every day making a choice to get through the day. You go to bed knowing you’ve done your best, say a little thank you, and fall asleep. And sometimes you stay up because your body won’t let you sleep.

Don’t get me wrong. I’m not sharing this because I need pity (doesn’t help) and nor is it that I’m so devastated and can’t continue with life. I just wish to share two things –

1. Be grateful for your health if it’s still on your side. Not because it could be worse, but because you are okay today. In this very moment. Choose health, always.

2. It’s absolutely okay to cry. To feel like utter crap. To grieve over what’s gone. To worry, to feel upset, to feel annoyed or frustrated. It’s all okay. All normal. Let yourself have those emotions. Cry. Write. Yell. Speak with the ones who are on your side. Hug them. Whatever helps you process that emotion, do it. Then, once you’re better, remind yourself that you’ve got this. You’ve always done it right and you know what to do. Trust your body. No matter what comes. Honour your health. You’re on the same team.

Love,

MD

❤︎

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