Right Knee Update [3]

My right knee still isn’t doing well and I still need my walking cane to even walk around my apartment. I wasn’t expecting it to take this long! I’ve been home over the last 8-10 days and I’m just waiting to be able to get my to my usual routine. I’m still in so much pain, like deep muscular ache and that one point where the shelf hit my knee cap still hurts like pure crap.

Here’s a good news though – I haven’t shattered my knee cap or fractured anything. It looks pretty alright in the X-rays.

So you’d wonder, why the heck are you in so much pain?

Let me explain. Our rare bodies have a tendency to get bruised easily. That’s just how it is. Impact from any hit, even if it wasn’t as strong for a normal person, can feel like someone shoved a knife in us and left it there. On top of that kind of sharp and deep pain, thanks to our faulty collagen, healing and recovery takes forever. Like I’m not even exaggerating.

F O R E V E R.

The normal response of our bodies, after an impact, is to stiffen and tighten and freak out… which leads to our muscles literally contracting and turning rock solid. Which, by the way, doesn’t help one bit. Contraction of muscles only makes our original injury worse and more painful as it tends to exert extra pressure around an area that is hurt.

I would think if someone else got hit the way I did, they would have been perfectly fine by now, continuing with life, jumping and hopping around and training for a triathlon if they wished. My body on the other hand is  trying to do what it can do to keep me in one full piece that I wish to be in. It is keeping me in bed and demanding a lot more rest than usual. It’s unfortunate that the pain is still killing me but I’m very well aware that it’s a matter of time. Because I know my body only needs extra time and rest, I think I’m willing to be patient with it. My specialist wants me to go for more physiotherapy and  deep tissue massage (manual therapy works well with my body so I’m up for this! ) which can help release those horribly tight muscles around my knee. My quads hurt. My calf hurts. My bum hurts. My foot hurts. Basically, my entire right leg is just having a sickening flare up. 

Thankfully, I’ve pre-booked appointments with my temporary physiotherapist and massage therapist and don’t have to worry about being put on a waiting list this time.  Life turns into hell if you are injured and can’t have your regular physiotherapy sessions. I’m serious.

Now, did I mention how fatigued I’ve been lately? No? That’s fine, I’m too fatigued to type.



Right Knee Update [1]

Thank you everyone! I truly appreciate all the love and kindness I’ve received from all of you. Thank you especially to those who called and messaged to check on me. I was in bed last night for three hours straight, icing my knee and releasing the tightness around it and just holding myself in place. I also manage to tape my knee up and put a guard on just to make sure it doesn’t shift in sleep. Got up this morning feeling super drained out, as if I ran a marathon last evening.

On a normal day, I’m already using a considerable amount of energy to hold myself up, given the nine degenerative and unstable joints I have. A small incident like last night’s requires even more out of me and my entire body. The good thing is that I am able to stand up and walk around today, albeit slower than usual and with a cane for support, but it is still manageable.

Thank goodness it’s nothing major and just seems like a slight amount of internal bruising. With EDS, it’s easy to hurt and bruise yourself as you can’t always gauge when what goes wrong. The impact does a lot more harm and you experience a significant amount of pain as compared to someone else in the same situation. As usual, one can’t always tell the effect on skin level, but turn out bodies inside out and you’ll see what a magnificent mess it can be :) Anyway, it’s a matter of a few days … lots of extra rest and care, usual pain management and being kind to my body and I will be up and about again.

Right Knee [shelf incident live]

It’s unbelievable even now, at least a bit still, that just ten minutes back, you’re chatting with your best friend, working on your business and happy about your day and now, just ten minutes later… You’re in bed, with an ice pack over your badly bruised knee.
I was just sitting on my office chair and i tried to scoot in and hit my right knee against a shelf and that was it. I’m pretty sure that my knee cap had a mini sublaxation in that fraction of a second. That impact, that pain… Was intense… Is intense.. And I was there… Stuck on my chair for ten minutes,tears rolling down my eyes, unable to move, wondering how to reach for my ice packs which were at least a twenty steps away.

Thank goodness my walking cane was right next to me and I managed to get myself up, grab my ice packs and get to my bed. Your body has its ways of reminding you that you aren’t dreaming. This is real. All of it. Every single day.
I’m resting it out for now. I’ll figure out what to do next very soon. It all depends on how well I’m able to weight bear once I attempt to get up. I think ill be fine… Maybe not today or tomorrow… But soon.

If you’re thinking, “What’s the big deal?”, then all I can say is that it is worth educating yourself about the “big deal” that it can be. Think about it… If you’re capable of dislocating your joints without any trauma/accident and experience pain 24/7, you imagine what a slight impact can even do.

I’ve had my shoulder move out of place when someone at college bumped into me. I’ve had my knee caps, shoulders, back and neck experience the worst kind of impact in a mini car accident. So many more of such incidents and they were all a huge deal.

Things go wrong while you’re at home, doing the most basic of things. I’ve had my shoulder move out while washing my hair, my wrist move out while brushing, I’ve had my right shoulder move out of place from just opening my fridge, my knees giving away from sitting on the floor, my back has its flare ups almost every day from “too much” walking or sitting… and the list just goes on.

I never really post about such incident live but I thought I’d do it with the last few spoons I’ve got for the day. My energy is down to zero from just trying to hold myself together physically. Bear with me if my thoughts are all over the place right now. Just wanted to share this experience as it just happened and I still find myself wondering how ridiculously unpredictable life can be when you’re dealing with something so rare.

Goodnight everyone