Hello, April! 

Just a mini reminder to stay true to your own journey and pace yourself. Time is never in our control but how we use time is.

March was a busy month and I’ve been feeling more exhausted than normal (I know, I know, for those without chronic illness, this must hardly make any sense). The good thing is that whatever was planned for March is all done and that’s one big step in the right direction. However, before I could even allow myself to fully rest, there’s stuff lined up for April which I want to tend to. Half of me is excited and the other half just wants to hibernate because you can never get enough rest when your body is constantly using up a lot more energy.

It feels like there’s hardly any time to recuperate from March! The workaholic, Ms. Productive in me wants to take charge and make things right and “fix” everything and never stop (this is the older version of me who thought she had it all figured out because at one point she did and guess what, I’ve grown to listen to her less and listen to my body more) because time is running out or something. The truth is, it always feels this way unless I take the initiative to really create space and find time for selfcare – to think less in terms of productivity and more in terms of peace, love and what makes me smile from within.

It’s funny how we think we have control over time when all we have control over is how we respond to it. Time continues to fly and do its thing and either we learn to work with it and use it in a way that aligns with our true selves or we let it freak us out and allow it to paralyze us further.

Three years back

Just about three years back, probably towards the middle of a very #dark phase of hating my body, I swore upon myself to never travel until I felt #ready. Unfortunately, I didn’t believe I’d ever feel ready enough to live in this body or #travel with it. While most people of my age were getting excited about traveling, I was feeling trapped in a body that only looked normal.

There came a point where I didn’t want anything more but to be able to look after myself, #trust my body again and be okay with where I was at. It was such a #challenge because there was absolutely nothing trustworthy about my body. I realized I could care less about seeing the world or chasing goals if I couldn’t even wash my own hair or walk around my own house.

I left a part of my past behind, took a couple of major leaps of faith and started living on my own. I decided to create a routine which provided me with the kind of stability that my body lacked; that my #environment lacked too. The idea was to build myself up again, to become comfortable with the cards I was dealt , to #empower myself and honour my #health. I had to re-imagine a life that is different and also learn to believe that different doesn’t mean bad.

After three years of the very same #routine and #lifestyle – Physiotherapy, Pilates, allopathic medicines, complimentary therapies, lots of positive-self talk, re-connecting with my creative self, allowing myself to cry and experience grief fully, accepting limitations, fighting for instead of against my body, letting go of people, places and situations which didn’t serve my new self anymore, feeding myself nourishing food, learning to find reasons to be grateful — and something shifted within me. I suddenly craved a #change, a mini #break from this routine that I had created for myself. Some time away from it to see how far I’ve come.

I’ve got more information now. I can see the #progress I’ve made and there’s more to learn. To be honest, I don’t know when I’d feel ready to travel again and this time it doesn’t matter at all. It doesn’t make me feel any less or more because I believe time will come when it must.

#notsoinvisibleillness

When reality hits you in the most unexpected moment, 

Look. 

Feel. 

Don’t distract. 

Look again. 

Feel again. 

Breathe. 

Let go. 

Breathe again. 

Let go. Again. 

Breathe once again.

Let go. Once again. 

Everything is okay in this very moment. 

You are okay. 

Day six #bedbound: Back is still at 8/10. Burning. Aching. Spasming. This pain won’t let you rest. You can’t recover without rest. It’s a never-ending, vicious cycle. It hurts so bad that you wish you could dismantle yourself and put your back away for a while. But you can’t. There’s absolutely nothing to make it any better. All you can do is what you always do – listen to the pain, tend to it and relax into being where you are at. Stay present. 

#Spoonielife

You know you’re a spoonie when you wear your pretty little black dress to bed and feel okay about it.

Alright, jokes apart, it’s my fifth day in bed and my back is still spasming. I’m okay to lie down or stand up for a bit but I just can’t sit or walk around as yet. Yesterday’s Physiotherapy and dry needling session gave me some relief and now my muscles are tight and pretty much knotting up all over again! I’ve got a couple more days before my next session and must manage till then. Already looking forward to it.

Happy resting, my dear spoonies!

💕