I hate the idea of not being able to shower first thing in the morning. I might sound like a little baby making a big deal out of something so small but really, a shower first thing after getting out of bed….means a lot to me.
1. It marks the start of my daily routine and I feel a little disoriented if I don’t begin my day with a nice shower. Mentally, I’m a zombie till I shower.
2. It helps with muscle tightness and soreness that I experience pretty much every morning. I can’t say it takes away all the aches but it surely makes me feel at least about 10-15 percent better if I start my day with a warm shower to relax the muscles.
I’ve got about a total of 6 hours to go before I’m able to shower.The holter will be off in just a couple of hours but I may have another test after that…
I was specifically told ” try not to sweat too much” (and make sure that the equipment doesn’t come into contact with water) while the holter is on me and that’s a bit hard when it’s so freaking hot outside. Sweat can cause the adhesive plugs to fall off and it can also get disgustingly itchy. I didn’t bother walking yesterday or today either. I’m sitting in my room with the AC on and a fan blasting on my face as I type this out. Oh yes, I cancelled my physiotherapy session for today as well and I don’t think I’m walking till tomorrow.
Have I ever mentioned what it is like to miss a physiotherapy session?
It’s baddddd. I mean, I know how to tend to the pain I feel in general but I can’t quite reach all the spots or work on all of them myself. No, I don’t have that much strength in me. Plus, I’m hypermobile enough, so I don’t like the idea of stretching myself into awkward positions either.
I haven’t quite written here in a while now and I don’t plan to write too much today either. I’m feeling too exhausted from yet another long appointment. Besides, I also have a holter hanging off my body today.
A holter is a small portable device that is used to continuously monitor the cardiovascular system for 24-48 hours. My visit to a Cardiologist was sort of due as my heart rate had been acting a little abnormal for sometime now, and it took me a very long time to realize that this was yet another symptom associated with HMS/EDS.
From what I know, things can get a lot more complicated if you’re diagnosed with the other types of EDS (all the other five types excluding type three) but my Neurologist thought it was a good idea to get it all checked anyway considering my long-ish medical history. Makes sense, I felt this was needed too. These are conditions that can potentially get very complicated and can turn into something risky, we all know that. And I’ve learned it’s always better to be safe than sorry so I’m glad we’re finally doing this. I might also need to go for a few other tests over next week just to make sure everything is normal.
The nurse commented that I should’ve worn something “more loose” since all the plugs and wire would show from my tight-fitting tank top and that’s “not nice” but “that’s ok”. Well, who knew I was going to have that many plugs and wires hanging off my body! Now I know better – whether you look like you walked out of the operation theatre during a heart surgery is not the point really. The point is that this can get a little uncomfortable, with wires and a portable monitor dangling off you and adhesive plugs attached to your chest, so one would rather be in a loose-flowy top (or pyjamas?) than a tank top, right?