Spending the next few days and possibly even the rest of the week in bed. I tried to push through last week, hoping the tightness and spasms in my lower back and sacrum subsided but unfortunately, there has been no progress. Strengthening is on hold for the time being and we’re trying IFT + manual work on my lower back during physiotherapy.

About six days ago, i fell right on my bum while taking a photo of a friend and since then, my already triggered lower back pain got much worse. Having a sublaxed tailbone and two slipped discs makes pain unbearable sometimes. Add injury or impact of any sort and that takes it to another level. My reaction was to get more physiotherapy done, tend to it using all my pain management techniques and increase my dose of analgesics and anti-inflammatories.

Yesterday, however, just as I was trying to get out of bed, I realised I couldn’t possibly let this continue. I had to finally pause and listen to my body. I need to provide it with a conducive environment to heal and recover. I now need to allow it time and give myself permission to rest without guilt. Starting today, I’m going to do just that. I’ll work on my coaching coursework and do what is possible from my bed, pacing and resting when necessary. It’s time to give it time.

Advertisements

Anger

Some of us are raised having to justify our anger. We are raised to think that emotion of anger is “bad” and that we are bad people for experiencing that feeling.

Anger is not inherently a negative emotion. It is an emotion that calls for acknowledgement + action. Perhaps what you do with it could be categorised as a negative or positive action.

We need to raise our kids to understand that feeling angry is as natural as feeling happy and emphasize fully experiencing anger and then responding accordingly. Not reacting. Responding.

Really asking, “what is my anger telling me?” instead of distracting the moment you experience the very first sign of anger.
We need to teach our kids to find productive ways of processing anger without feeling afraid of it or feeling guilty for having that emotion.

We need to teach them to sit with it.

Write and share it in a safe space.

Maybe go for a run.

Channel it into a creative project.

Anger and passion are two sides of the same coin. Suppressing one means suppressing the other and consequences of both aren’t healthy.

Growing up in a dysfunctional family, I’ve seen both extremes. One side acted out, the other preferred to suppress and I’ve personally seen how damaging damaging both can be. One can damage your relationship with others, the other can easily damage your relationship with yourself, which then ultimately affects the first.

I’m not advocating reacting in a way that’s hurtful or acting out because that’s giving in to anger and nor am I suggesting holding on to it till it crushes your insides.

We don’t want either.

We want to try to tap into our wisdom and awareness, knowing when to take some time out to ourselves to feel the anger, where to speak about it and most importantly, what to do with it.

Last few years of spending a lot of time alone, I got a chance to work on and let go of the trauma and pain from my past which needed to be looked at. Thankfully, I’ve healed from most of it but I still remember how that emotion has always caused me more pain than it needed to.

I didn’t know what to do with that anger because of what I saw around me as a kid — how was I supposed to experience and overcome anger if I either wasn’t allowed to speak about it OR was surrounded by angry people, yelling and screaming at one another? How was I, as a child, supposed to gauge what is right and what isn’t? So I naturally grew up confused around that emotion — feeling like utter shit about myself for even having that feeling. I held on to it until one day I figured it was eating me up from inside. It took me a while to find productive ways of dealing with my anger and it started with naming it. Being okay with it. Letting myself have that emotion without generating more drama around it.

Sometimes anger just wants to be heard. And I wish someone told me that 20 years ago.

These days I write about it until I can’t write anymore. I cry it out. I call my close friends and request them to be my sounding board. I take a bath. I go for a walk alone. I even speak with my spiritual guidance teacher. If I feel like it, I draw out my feelings and then tear out those papers. Sometimes I keep them to look back. Then I meditate. Take deep breaths throughout the day and sleep over it too. I give myself all the time and space I need to fully experience that emotion before I decide how I want to respond to the situation or the person who triggered the anger in me. At times this looks like having a word with them and at times, it looks like never going back.

Next time you experience anger,give yourself the full permission to feel it without any form of guilt. Remember, it’s both natural and okay to experience “negative” emotions. You’re don’t have to beat yourself up for feeling them. Instead, lean in to those emotions. Listen in.

Be kind with yourself. Find your safe space where you can feel your feelings without being judged and remain there for as long as needed.

<3

How do you define work?

https://themighty.com/2018/02/unable-to-work-because-of-illness/

Every bit of this resonates with me.

It’s a constant struggle for people like me to remember our worth when there is so much stigma around being sick (especially young and sick) and not being able to work.

It often makes me wonder, how do you define work anyway?

Does work = I bring money to the table every single time? does my voluntary work with kids with troubled childhood which doesn’t earn me anything but makes me feel valuable and like I’m making some difference count as work? Does me trying to help an individual who is newly chronically ill/struggling with their health mean anything in the society at all?

What about the times I teach classes hoping they help those who participate — does that count as work even if it’s not always sustainable? What about the job I did as a receptionist at a pilates studio hoping I’d be able to stick with it and then got bedridden — does that count at all? Is that seen?

Does it matter that people like myself at one point had great aspirations and goals too and had to leave those behind, grieve our old selves and learn to accept what we’re presented with? Does anyone ever see the pain and the courage behind having to leave what brings most of us financial stability and freedom in order to prioritise health?

What about the work you put in day in day out to look after a faulty body? Imagine having to look after an extremely mischievous and sick child who doesn’t listen to you for twenty four seven. No break whatsoever. Not even when you sleep.

It’s easy for people to ask, “what do you do?” because it’s the most common way to start a conversation. It’s also very understandable and I have a standard answer ready. But you won’t believe the number of people I’ve come across up till now with the mindset that if you’re not working, traveling and or working out, you’re probably doing nothing. Or not doing enough of something. Or aren’t ambitious enough. Have no goals. Have nothing figured out.

What makes so many people think that those who’re sick are lazy or not ambitious enough? Couldn’t our ambitions and priorities have changed? Can we not bring empathy, compassion and kindness to the table instead of money? Is it not possible for us to do our part in some other way? Can we not be the people you turn to when things aren’t going right? Can we not support the family and household in other ways?

Or how about this: is it not possible that by us doing our self-work and learning to accept and tend to our illness allows us to manage the illness a little better and hence take some load and burden off those who are trying to support us? Isn’t that work too?

So I’m sitting in my living room listening to mantras, my palo santo burning near my bookshelf, and i suddenly realize how quiet my entire apartment is. Everything is quiet. I’m in a noisy country but at this very point in time it’s all so quiet around me. I love this. I crave for this so much. This quietness is something I want and need to live this life to my very best.

There’s been far too much movement in my life lately (or should I say, all my life) that these moments of stillness is what brings me a sense of stability and peace. It allows me to connect with myself, which has been a little hard lately considering how terribly off track I am in terms of my daily routine and rituals that help me stay sane and manage my health. I can’t possibly stress enough how much a routine and some personal rituals have helped me to get here.

As the unpacking ends and the actual settling in begins, it looks like I can finally let go a little, slow down and focus a lot more on my health.

For the last eight months or so, my health took a backseat as I simply had to get through this move. I’ve been feeling sort of out of my element, you know, kind of scattered and all I know is that it’s not where I like to be. Despite dealing with a lot more health issues throughout 2017, I’ve had to push myself and make things happen. My thought was, the quicker I got things done, the quicker I got to rest. And now that my sanctuary has come alive to quite some extent, it’s time to prioritise health and self-care and work towards my next goal. More on that later.

Okay, I’m going to keep my phone away now and get back to sitting still. To listening to my heart beat. To watching those crazy thoughts come and go. To noticing pain.

To being thankful for being here.

#sanctuary #quiet #evenings #peace #calm #love #home #mantra #meditation #chronicillness #pain #suffering #eds #ehlersdanlos #ehlersdanlossyndrome #illness #routine #rituals #onestepatatime #gratitude #thankyou #health #mind #body

A box from the past

#rarediseaseweek #2018

Just yesterday, I found a box filled with all my design stuff which I hadn’t seen in many years. It seems I had forgotten about it and left it with my dad because I wasn’t ready to accept my new reality (and discard anything) and nor was I able resist it. I was experiencing the most horrible internal conflict of all time

To hold on or to let go.

My heart knew well that I needed to let go because I had fought enough and my body was changing. But my mind wouldn’t let me.

Holding on would mean disrespecting and dishonouring the one and only vessel I had for the rest of my life. I had to learn to accept it for what it is but how could I let go of all the things I loved, planned and wanted so much? I was suffering in every way possible.

I knew I had to pause but it was hard to put away my dreams and aspirations for a long period of uncertainty, of not knowing and having answers. And that was scary. But I did it any way because I could no longer neglect the messages from my body.

So when I decided I was ready to jump off the cliff, leave my full-time job, learn to live on my own and put my body first, I told myself I’d deal with this box when I am able to see my past as just one part of my life and not a reflection of my worth . Leaving the box behind, I remember feeling as if a burden of expectation to be the “perfect one” was lifted off my shoulder and at the same time, a heavy sense of grief towards my old self engulfed me.

Who am I without my dreams, I thought.

I know nothing off this path I have carved and imagined. I will be lost. I am lost. And what if I am never found again? What if, despite all my effort and desire to leave my old self behind, I can’t do it? How will I live from here, with the burden of having and wanting to be perfect and knowing that I was born in an imperfect body?

Does honouring my body, which feels like the right thing to do, equate to failure?

Will I be a failure in everyone’s eyes?

Am I a failure in my own eyes?

Here I am now, all set to let go of this box and its contents because they don’t serve the present me.

Maybe it all made sense to some extent then, at the age of 20 and in that once healthy body. I knew nothing more. All I knew came from old, expired programming that I grew up with and around. Today, I believe I am a better version of myself and I’m proud of how far I’ve come.

Of course, my past has served a purpose; it lead me to this day. It taught me the importance of tapping into my inner strength, finding courage to do what is right for the sake of my body, mind and soul without letting the external factors lead me into believing that what I knew was the only truth.

Today, I understand that those around me need not understand me, and that it doesn’t matter if one thinks of me as less but it can be disastrous if I ever let myself think I am not enough. Because I am. And while my path is new and least travelled, it reflects a truer version of myself. It is taking me to a place of peace with my body. I believe and I’ve noticed that this internal shift brings me closer to a life of joy and purpose, one where I wake up everyday knowing I’m making a difference whether or not it is visible to whole wide world and where I live each day as gracefully as possible.

Here I am now,

ready to let go of this box,

both literally and figuratively,

and make space for the new.

With a heart full of gratitude and a lightness, I am ready to give this part of my life a complete closure because I had already said goodbye a long, long time ago.

#chronicillness #ehlersdanlos rarediseaseweek #ehlerdanlossyndrome #hypermobility #EDS #rare #illness #2018 #awareness #pain #suffering #fatigue #brainfog #past #lettinggo #memories #interiorarchitecture #goals #dreams #aspirations#acceptance #health #mind #body #soul #purpose #healing #love

\

Favourite spot

Thank you, for being that one safe and healing space where I could just be without having to worry about what I am “supposed” to be or need to be.

Thank you for reminding me of the power in being soft and letting things unfold at their own pace. You’ve taught me how to find beauty and to come back home to myself whenever I had no where else to go. You’ve been wonderful.