September 18, 2014

September 18, 2014 was a major turning point in my life. I was on my way from school and a lorry hit my cab from the back, causing all the joints in my body to literally rattle and weaken. I experienced a quite an intense whiplash; with my neck and spine feeling the most amount of stress. Just few weeks earlier, someone at school had bumped right into my left shoulder, causing it to move out of position once again. I was barely healing from that injury when this accident happened. My left arm was in a sling and just as I settled in the cab on a long ride back home, I opened my sling up to give my shoulder a little rest when within seconds there was a loud bang and I thought that was it.

It took me a few seconds to actually register that a lorry hit my cab and a few seconds more than that to notice that my body was in shock.

The impact of the whiplash was so great that I couldn’t move one bit. I still remember how the traffic police just peeked into the cab, looked at me and got us to move to one side of the road and rode away on her motorbike. She didn’t think it was necessary to ask me if I was okay, and I assume it was because I looked completely alright! There was no blood, no visible injury for anyone to think that I was in severe pain – but I was. At that moment, I thanked my stars for being alive. It could have looked a lot worse but I was alive. I was in immense pain, but I was alive. I was breathing. I had no strength left in me to even make my way out of the cab in order to take down the details of the lorry etc.

That accident led me to make some even greater changes to my lifestyle. I was at the brink of having a major burnout and I didn’t want to fall into the dark pit of pure despair once again like I did around the time of my diagnosis. I had been working and pushing myself through life as if I was born with a fit and normal body, taking on too much and practically functioning on an empty tank. I was comparing myself to those around me who were blessed with a body that allowed them to continue to work according to their plans, pursue their passion and hobbies and I was only causing myself too much suffering. There were people around me who expected much more out of me and I was one of them too. It was this accident that made me see my reality, and for once stand up and make that tough but highly necessary call. It was time to prfioritize my health, my dear body, over anyone or anything else.

For months before September 18, 2014, I was hanging by the edge of the cliff, unable to take that leap of faith, which was required in order for my situation to really change. I feared screwing up and I doubted I could survive the consequences of those decisions. I was worried-sick, even though I knew I had to hold myself together and take that leap. I was suffering every single day, caught between what I should do versus what I need to do and want to do, and was experiencing terrible amount of fatigue and pain. I didn’t have it in me to close my eyes and trust that I knew what was right for my body. My personal expectations and those of others tied me down too much and kept me from giving myself what I needed at that point in time. Seeing that the life of those around me was far too different from mine used to make me feel as if I was at fault or as if I didn’t do enough and that wasn’t true at all. How my life has panned out wasn’t my fault. I didn’t consciously choose this situation and neither did I choose these circumstances to be born around or with. These were the cards I was dealt with and it was up to me now to stand in my own power and play them in a way that’s true to who I am and my condition.  This wasn’t a race against time or people. This was simply something I had to learn to work around.

It was also around this time that I understood that different doesn’t mean bad. It just means different. Sometimes different is good. Sometimes different is even better.

This accident finally made me realize that I had to stop. I had to pause and breathe before anything. I hadn’t given myself that permission to just take it slow because I was constantly thinking about my past goals or about not disappointing people. For months before the accident, I couldn’t gather the courage I needed in order to finally let myself rest. To say enough is enough and realize that it doesn’t matter what people say or feel, even if they’re our loved ones, because no one really knows what’s happening to us or our story as well as we do.

This accident FORCED me to STOP. It forced me to question my priorities. Was I my own priority or had I been giving priority to everyone else and everything else?

It was this accident which once again proved to me that not everything is in my control. I was looking after my body well, making sure I did what was needed for it to function, and did what I could to be more aware of my surroundings in order to not make any “mistakes” and hurt myself… AND guess what? This accident still happened. No matter how much we try to do things a particular way (often times we refer to it as doing things “right”), there will always be incidents that are totally beyond our control, and this accident was one of them. More often than not, these things happen because they’re meant to make us think. To force us to jump out of our comfort zone, or make that difficult decision, or simply to teach us something we are yet to learn.

It took me months to feel a slight amount of relief from the impact of the accident. Till then, I was popping an obscene amount of medicines to get me through the day and look and feel normal. Dealing with the post-accident stress was another story of its own. My skin was covered with a faint rash, which took a long time to disappear, and I was waking up at night dreaming of being hit and falling apart. At times, getting onto a Silvercab makes my body cringe a little, and I can’t help but be reminded of the accident and the effect it had on me.

Today, one year later, though there are still a few question marks in my life and there is a fair amount of instability and uncertainty associated with this condition and its consequences, I am so happy that I took those big steps forward. In some ways, this accident really helped me pick out what I needed to focus on. I chose to do things that felt right to me, even though I didn’t have a clue about whether or not they would actually turn out to be the “right” decisions ultimately. The thing is, I am now fully convinced that any decision made in favor or who I am at the very core of my being, and what my body truly needs for a condition that I’m born with,  has to be right; or at least must be one step closer in the right direction.  In fact, what is right for us today may look different tomorrow, depending on where we are our life anyway. Who says we can’t change our mind later? We might not be able to go back to that exact time, but we can most certainly learn to adapt and make better decisions as we move forward. Today, I’m  putting together a lifestyle that serves my present state and figuring it all out one day at a time. Some goals and dreams look significantly different from what I once thought I’d want, while some continue to stay strong. It surely requires a lot of patience when you have to rediscover all the possibilities while dealing with limitations so very real. 

My health has brought me closer to myself.

I’m relieved to finally have been able to write so much much about September 18, 2014. I barely spoke about it with anyone, so writing a blog post about it is a big deal.  

With that, goodnight and have a wonderful weekend!

❤︎

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It’s Time Again.

Over the last eight to ten days, I have been looking and searching and texting and chatting and writing and talking and asking and answering so many things  that I think my brain is practically dead out of the excessive energy drainage. Nope, this is not something I am able to handle. Though I’ve gotten better, and certain choices that I made are proving to be right, I don’t think I have an unlimited supply of energy stored inside of me to handle so many things all at once.

It’s been a crazy hunt this time round too, and even with my physical limitation, I have managed to overcome this hunt. It’s a little accomplishment and worth a mini celebration because such factors add to the stability I need, which allows me to then work on things that I want to work on!

ODAAT has been on a pause for about a week. I came back home from a 6 week long family vacation and a new disc injury, ready to settle in and start with things I had planned to work on for ODAAT. Within a few days, I found out that I had to leave again and I was reminded  how unpredictable things can get once more! Not everything goes according to plan all the time. I wasn’t expecting this; so when I found that I had to leave, I wished I hadn’t unpacked from my vacation. The amount of energy lost in packing and unpacking just cannot be underestimated. I felt bad that ODAAT had to be on hold again, but my mantra has been One Day At A Time for a longggggg time anyway and I’ll just have to create another ‘flexi-plan’  when I’ve finally settled down in my new place. Looks like it’s time for yet anther directional change. A BIG major directional change. Leaving a place all of a sudden, managing a new disc injury and feeling weak from it, knowing the possibility of your close friend leaving and having no idea if you’d find a place just in time sounded like a bad combination of things to happen all together.

But it all turned out fine.

I looked up places like a mad woman, day in day out, could barely nap, had terrible sleep at night, and the concept of self-love faded off my mind for a bit because I was convinced that finding the right place was more important in this time of my life more than anything else. When you’re doing a lot of internal work, looking after yourself and working towards a future once again, the last thing you want is to be in an environment that doesn’t serve the same purpose for you. I decided that finding THAT one place for me to live in is going to be a true gift of self-love that I can give to myself at this point.

Yes. Uncertainty multiplied by a about a million.

One thing that was particularly different this time too was my fear level. I knew that place was out there for me; I was just a little nervous about the time that I was left with. I did my job to the best of my capacity (fine, I did push my body by a fair amount) and because I have to always think in terms of my body, the time limit just made no sense. Even then, I am happy to have handled this entire situation fairly well. Sometimes looking at the most unexpected events in your life as an opportunity to grow makes so much of a difference. This is an opportunity for me to grow. Thankfully, it’s been progressive, and even though it seems like ONE FAT LEAP FORWARD again, I’m less afraid of falling. I’m very very  grateful to have been in this place for the last ten months or so, learning to look after myself, taking baby steps forward and around the house, and having a very understanding flatmate to share this little place with.

The way I found my existing place last year was either a random stroke of luck or something that was meant to be this way. I’d like to think it was both. Back then, I was sure about my decision but I wasn’t sure I’d be able to survive. Finding a place that gave me all the space I needed along with someone I could speak life with, just sitting on the couch on random nights, was a great start to my goal towards becoming more independent.

I now look forward to yet another chapter of my life and as daunting as it can get to do this once again, I am ready. I’ve seen that sometimes you just have to let go of the cliff first to realize the immense strength and power you have residing within you or to notice all the different arms and fluffy, padded cushions just waiting to receive you. Support comes from all over the place if we are willing to open up, share our vulnerabilities and ask for help – neither of which equal to weakness.

Happy Wednesday!

A Space.

I’m going to have to make a big decision soon and I just want to write a little bit about it. I’m sure I’ll be able to write more once things settle down a little bit.

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“Honor the space between no longer and not yet.” – Nancy Levin

It’s something that matters to my existence once again (nope, no drama here); to the stability and certainty that I find beneath my feet; something that could add to a little bit of  stillness to the hypermobility. It’s not just a  pretty space we’re talking about, it’s a space where I can be me, just the way I am , with myself, and be there for myself like I have been over the past ten months or so. A space where I get the peace I crave, where my body feels safe, and gets the rest it needs. A space where my mind can breathe, and the air that fills me, heals me. A space where I would spend most of my hours in the day. A space that reminds me that it’s all okay.

We need this. Each of us. This stability, this certainty. We need this. A space that prompts us to think, to become our best selves.  To bloom into what we are yet to become. We need a space that acts like a reminder, that even int the worst of the times, we are here for ourselves. I know I’ll be safe, no matter where I go. I will be taken care of and things will fall into place.

I’ve found myself in such a situation countless number of times. I’ve known exactly what I needed, and exactly what to pick but I still was in a strange sort of a dilemma, which really shouldn’t exist. I’ve been surrounded with fear and worry, and little sparks of strength and courage that rest deep within the core of me.

 We usually know, don’t we?

How do you people deal with such situations? Do you put your situation above your health and fundamental needs? Or do you allow yourself to get what you need first before dealing with a situation at hand? Can any other situation be greater than your own health? I’d love to hear, if anyone is willing to open up and share. I’d love to learn.