One a dancer, always a dancer

Days like today – dress up, blast music (today was all lavani style), imagine you can dance. Imagine you can dance like no ones watching and set your mind free. Alright, you can move a little bit. It’s okay that you can’t dance like before – you can still feel it and imagine with all that you’ve got. Just don’t over do or get totally carried away. Stay aware. Be present. You’ll be fine. You need this. Do what your soul truly craves and make sure you have your next Physiotherapy session booked. #passion #dance #love #lavani #bollywood #danceforyourself #trust #freedom #soul #pinga #happiness #chronicillness #rareillness #invisibleillness #illness #spoonielife #inspiration #motivation #mytapestory



I recently met someone who told me that I don’t look sick at all.

I smiled.

I said, “I know. I’m happy I don’t I guess.”

It never fails to make me wonder what we expect “sick” people to look like. What we define as “broken”. What we think needs “fixing”. Whether “imperfections” are always visible and whether what we see is all that there is.

There was a phase when I wished people looked at me and believed my words. These days I trust that people who need to know will see it for themselves and trust me, while the rest are free to create a story around it. Believe me, you can’t completely hide chronic/rare illnesses.


You don’t have to look sick to be sick or feel sick.

And you don’t have to prove anything to anyone.

All you have to do is attempt to feel and be as healthy as possible, and always be honest with yourself – that’s all that matters.

Lots of love