My RARE Patient Story Is Finally Up!

I wrote in my personal story for Global Genes sometime early March. I just received an email saying that it has finally been published! I understand it can sound a little bit repetitive for those who’ve really followed through the story of my diagnosis. In that case, here’s a summary of it anyway. Hahaha.

https://globalgenes.org/raredaily/recognizing-ehlers-danlos-the-diagnosis-made-everything-fall-into-place/

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