After Diagnosis : January 2013 – December 2013

Part 5 and 6 : How other joints in my body continued being affected + Current Situation

Neurologist

Things went beyond control. Pain was beyond control. I started reacting to my pain medications because the dose was just too high. By then it had been three and a half years since I first started needing medicines. I was vomiting and losing strength day by day. I started developing severe migraine along with all that; it was the type that just didn’t stop no matter what. I couldn’t fall sleep because I was hearing a buzzing sound at the back of my head. Even a stronger dose of migraine pills didn’t quite help.  It was getting freakishly scary and I needed to be hospitalized.

I started seeing a Neurologist then, who changed my prescriptions once again. I needed sleeping pills to fall asleep because the pain in my lower back, tailbone and left arm wouldn’t let me sleep otherwise. He cut down on the painkillers, which made it very difficult for me to function through the day.

I turned into a zombie. Or something worse than that..

Osteopath

Because I needed help with pain management, I decided to see an Osteopath. I was scared of Chiropractors by then but I was okay with seeing if an Osteopathy could help. When I felt that he was also doing some form of manipulation too, I started to feel a little uneasy. I was told to stay away from these things now.

During one of my sessions with him, he did something to my left arm that was enough to make me never go back to him again. However, he was the one who introduced me to Pilates and told me that it was one thing I required for sure. The Pain Management Specialist had talked about it too, but I  wasn’t in the best frame of mind to understand it any better that time.

I started going for Pilates then, but I could hardly keep up with the sessions with that much pain.

I had no clue what to expect when….and when to expect what.

Right Shoulder Subluxation

In July 2013, my right shoulder went out of position. Without any physical trauma or accident. I was still in Business School, so with an unstable right shoulder, things started getting complicated. School was taking away my energy and yet I wanted to continue. I saw my Shoulder Specialist, went through another around of X-Rays and MRI, but there was no new information. We knew there was nothing anyone could do about it. I had to continue Physiotherapy, rest a lot and wait for it to strengthen up one day.

Even though I knew the reason behind why things were happening to me, it wasn’t so easy to just wait till some day to feel less pain.

Right Wrist Subluxation

In October 2013, my right wrist was affected. I still remember how the Specialist just shook it around a bit and pushed it back in. It didn’t stay in place anyway. He reminded me that I need to get used to this. So since then, my wrist has been dangling off my right arm, which is hanging off my body.

I also had to go for a neck MRI to make sure my neck was okay. It was okay, just not very normal. A bit more wobbly and loose compared to everyone else. The Specialist asked me if I was standing during my MRI because that’s how weird it looked in the scans.